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FibroDiva

Pre Op
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Posts posted by FibroDiva

  3. Posted

    When I finally made the decision to go ahead with WLS, the first person I talked to was my Fibro Doctor. He did a work up on me to make sure that my thyroid was working probably and even now, 3 months post-op, still monitors my thyroid. He explained to me that as a person with Fibromyalgia I have a risk of developing thyroid problems and this would counteract any benefits I reap from WLS.

    Here is a great article on Fibromyalgia's affects on weight.

  4. Posted

    The food and Drug Administration [FDA] is presenting an opportunity for our voices to be heard.

    On December 10, 2013, FDA is conducting a public meeting on Fibromyalgia Patient-Focused Drug Development. FDA is interested in obtaining patient input on the impact of fibromyalgia on daily life (topic 1) and currently available therapies to treat the condition (topic 2). The questions for discussion on these topics are located at the bottom of this page.

    For each of these topics, a panel of patients and patient representatives/advocates will present comments to begin the dialogue and will be followed by a facilitated discussion inviting comments from other patients and patient representatives.

    If you are interested in providing comments as part of the initial panel discussion, indicate so during the registration process. Participants for the panel discussions will be confirmed prior to the meeting.

    There will also be an opportunity for patients, patient representatives and others to provide comments on issues other than topics 1 and 2 during an Open Public Comment session. Sign up for Open Public Comment will take place the day of the meeting.

    Don't worry if you cannot physically attend the meeting in Maryland, you can attend via webcast also.

    click here for more information.

  5. Posted

    I am glad to see the new site is up and running. For a moment I was having withdrawal thinking I would not be able to see inspirational posts from the groups I enjoy, Where are the Over 50s, African American Sleevers, Chicago Sleevers and of course Fibromyalgia/chronic pain Sleevers.

    Travelbug1955 reacted to this

  8. Posted

    Good Luck to you. Are you feeling any better since your surgery?

    And good luck to you Goslin. I was doing great before the weather changed. I do not do so good when it gets cold and snowy.

    If you can, ask your Fibro Doctor to prescribe physical therapy about 1 month or so post op. PT helps manage flare ups and fight flab as you begin losing weight. Make sure to ask for liquid, chewable, or dissolveable versions of any pre-op Fibro medications you might be taking.

  9. Posted

    Mine has really been acting up since starting work as a nurse. I don't get enough sleep, and I'm on my feet a lot more. I know the extra weight is not good for my back, but I have been having cramping/pain from the back of my head to my heels. What is weird, is that it is all posterior, nothing on the front side of my body. I have had internal pains feeling equivalent to a horse having colic or a twisted gut.

    I have noticed my hips hurting a lot lately. Last night, I finally figured out that I am having flare ups. I have fever with mine, so I end up feeling flu'ish. It really sucks. I also figure that since I started my liquid diet last week, I may be getting rid of some toxins, that is also causing the flares.

    My Fibro symptoms initially reduced quite a bit after surgery, I think that might be because I started physical therapy immediately [about 1 month]. However, now that it is getting cold I am going into a flare. I always had problems with my hips and with each pound lost I do see gradual improvement.

    Yes, as you get rid of toxins you will at first feel worse then things get better. Whenever you move back to food try to avoid wheat gluten and nightshades. I found as I began eating these categories of food, they caused flare ups.

    Good luck

  10. Posted

    Also, no matter what I order, I tip as though I ordered a main course. I figure it's not the waiter's fault that I had bariatric surgery and can't eat much!

    I went to IHOP yesterday with my daughter, son-in-law, and granddaughter. While they ordered regular items, all I ordered was a slice of baked ham. I also tipped as if I had ordered a full meal.

  11. Posted

    I am pre-sleeve and also from the "clean your plate" club. When I was a kid...I couldn't get up from the table until my plate was clean. That is a very hard habit to break. So this got me to thinking about ordering out at restaurants. If you order from the kids menu....do you get any resistence from the waitstaff? I guess I could just order from the main menu and take home whatever is left over. I just hate wasting food!

    A friend of mine who had the sleeve done about a year and a half ago says that I better get used to wasting food. What are your thoughts?

    I recently attended a retreat where all kinds of goodies were served nonstop. A waiter asked why I wasn't endulging like all the other attendees. I responded, "I have a rare physical deformity, I don't have a stomach". He replied, "you know when you go out to eat, if you quietly tell your waiter about that, most times you can be accommodated with smaller portions. Don't be embarrassed to speak up and ask for what you need". I've been following his advice. I find if you say you had bariatric surgery, some people don't know what you're talking about.

  12. Posted

    For once I can say that I am happy to be an over 50 person with Fibromyalgia. My Fibro doc has been after me to get into physical therapy. My insurance required me to see a personal trainer prior to my surgery. The personal trainer gave me a list of exercises that smack of physical therapy so I gave in and started PT about a month after surgery.

    I've been gradually increasing my activity level and can see improved strength and stamina, and, others say I am winning the battle of the flab.

    I will work to upload the handouts that the personal trainer and physical therapist pass onto me.

    Hope they will be of assistance to others here.

    post-64573-13838396972362_thumb.jpg

  14. Posted

    Recently I attended a Fibromyalgia Health and Healing Retreat with my sister and a close friend [both have Fibro and my sister is in the pre-op stage]. Well my friend, who experienced a drastic unplanned weight loss and won't go to the doctor to find out why, was driving me crazy with the following statements.

    Feel free to add your own statements.

    13 Things You Should Never Say to A Sleever

    1. You had Bariatric Surgery, you’re losing weight the cheating way!!!
    2. I would never have that surgery, I can lose weight whenever I want the natural and real way!
    3. You know people who have that surgery all die.
    4. How do you drink those nasty shakes?
    5. You need to eat more, you’re going to die of malnutrition.
    6. OMG, you look like you’re sick now.
    7. You didn’t need that surgery, all you had to do was eat less and exercise more.
    8. Come on, eat some more, you’re making me look like a pig.
    9. Try this, try this, one little bit can’t hurt!
    10. Clean your plate, you know it’s wasteful and disrespectful to leave food on your plate.
    11. I told a friend about your surgery and showed her your picture, she said she thought you would have been humungous but you weren't so why did you have the surgery.
    12. Are you sure having the surgery was the best thing for your health?
    13. I can't be seen with you anymore because you're looking better than me.

  16. Posted

    Well, I must have been a Fibro Fog because I forgot about the Fibromyalgia/Chronic Pain Sleevers Forum. I've been posting on my blog. Now that the blogs are down, I realize I should have been posting here also. Anyway, I've been busy catching up on Fibro and I recently attended the Fibromyalgia Health and Healing retreat hosted by the Fibromyalgia Coalition International in Excelsior Springs, MO. This was a three day event. Day One of the Fibromyalgia Health and Healing Retreat was interesting. There were motivational speakers who talked about their personal journey to health. There was a music therapist who conducted an active presentation and demonstrated how we can use music as a form of biofeedback. Day Two of the Retreat was just as informative and fun as day one. There was a nutrition workshop that reopened my eyes about the fact that we are truly what we eat. It made me realize that I have been having rebounding affects brought on by my diet. You see, I'm one of those people who will follow a healing diet, eliminate those things that I have sensitivities or allergies to, get to feeling better and then go back to eating what was making me sick and wonder why I'm having flares. This was an ah-ah moment for me. As a Fibromyalgia/Chronic Pain Sleever, I've finally moved into the soft food phase and I've been eating a lot of mashed potatoes. Potatoes belong to a group of food called nightshades. Speakers at the retreat pointed out that nightshades induce pain in people with Fibromyalgia and various forms of arthritis. My group then went off for relaxing massages and dips in the hot tub and dry sauna. Day two ended with a gala dinner and a bidding war over a hot/cold therapy basket during the auction between my sister and me. We got all the way up to $95 dollars and someone else placed the winning bid at $105. It was fun and now I'm just going to have to make myself [and my sister] baskets for Christmas. Day Three of the Retreat was a gourment cooking demonstration. Dr. Gloria Gilbere [Dr. G.] made a nightshade free Gnocchi. This Gnocchi was made of squash and cornmeal. It tasted like a tamale and was a little heavy for me but my sister and and friend Rosemary liked it.

    fotogrphr reacted to this

  18. Posted

    Oh yes, and I still think every pound I lose will be my last. It's hard not to think that way after failing for years. One thing I have learned is that it's consistency and what you do in the long run that makes a difference. Every day, it's one foot in front of the other, follow the program and the rules, and it will work. It's slower for some, faster for others, and it varies from time to time for each individual.

    So true and insightful.

  19. Posted

    I had one of my worst days since my surgery and i got frustrated of things not going right around the house, things being broken or not properly functioning right, right away I notice that I wanted to eat but fought off the urge with a cup of green tea, the sleeve helped but the rest is up to me on staying on track and keeping focused . I hope everyone has a better day than I did and i know there will be good days and bad days, Lord I pray that you give me the strength to keep on track and that others that read this will have the power to over come there urges... Peace

    I understand how you feel. My stress has been my grown children and god-children. I understand that the economy is really bad, even for those with college degrees like my children, but I am so stressed with them constantly asking me for help. I feel guilty if I don't help them because I was once in their shoes but I also worry what helping them will do to my retirement life.

    Worrying about them causes stomach distress for me.

  22. Posted

    I didn't feel that way pre op...but I sure did post op. I wanted to be able to gulp Water down like crazy post op....I have always been a Water gulper, and for about 6 months all I could do was sip sip sip. I felt like I was going to go crazy! Thankfully that doesn't last forever, and I can gulp water down again. Just keep drinking as much as you can, it helps you. Good luck with your surgery, and recovery! :)

    this is good to know Sassygirl06. Like you I didn't feel thirsty pre-op. I could drink over 120 ounces of water and other Fluid all day long. Now that I am post-op if I can get in 16 ounces of liquid a day I'm pushing it. It is driving me crazy. I am soooo thirsty all the time and it is hard to talk because my mouth is so dry.

    http://www.verticalsleevetalk.com/blog/2563-fibro-divas-bariatric-blog/

    https://www.facebook.com/FibroDiva

    Sassygirl06 reacted to this

  23. Posted

    Feeling good. Tomorrow will be one week post op. Due to my insurance being kind of a butt about nexium, I haven't had a acid reducer but my nurse called in prilosec today so I'm going to get that. I hope that makes some sort of difference with the chest pressure and burps. Today is my first day watching my 3 dogs and 16 month old alone so wish me luck!

    Good luck. The dogs should be ok but your 16 month old may be a handful. The first time I watched my 16 month old granddaughter by myself I had a problem and had to call upon her other grandmother to help.

    Cocopuff88 reacted to this

  24. Posted

    54 years sleeved aug 5 th down 55 lbs includes pre op 30 lbs post op kinda in a stall this wk and a little tired but doing great over all

    Congratulations. I was sleeved August 1st. I'm down 42 lbs. Still having trouble with nausea and vomiting, but I did get to go to a conference the first week of September and enjoyed myself.

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