pink grace

thank you that means a lot to me, x

i have been told today that i do have lupus, waiting for another call to see what happens next. I googled lupus and found some posts about people with lupus having the sleeve, and they were fine, so am hopeful, just waiting but a step nearer, xxx

Hello fellower sleevers and sleevers to be, i am waiting to see the heamatologist but have still not got a date I saw my diabetic specialist last week and it was very encouraging, i am 3kg down since July, my last appointment, my blood sugar readings are good, and even though it is not his field he said that as far as he could tell i am borderline lupus and this shouldn't cause any probs with my op. I was able to ask him questions about when i stop injecting victoza and he reassured me that i won't go hypo after the op because i will have stopped the victoza. I am going to reduce the dosage when i get a date and do the pre op diet again so that i won't have hypo probs on 800 cals a day. I came home much relieved. I got weighed yesterday and was shocked at the scales, good job i was starting to cut cals and eat healthier that day. Hope all are well and loosing or maintaining weight, bye for now, x

Hi, i live near Doncaster which isn't too far from you, i have been waiting 2 years for my op at Doncaster Royal Infirmary, and am hoping to have my op in feb, i have had delays due to health issues and once the latest one is sorted i am top of the list.Are you having yours on the nhs? I go to a brill support group on the first thursday of every month and you would be welcome to come along if you don't have one closer that you can go to. We have people who have had all 3 wls and some who have not had their op on the nhs or in this country. Do you have a date, or are you waiting on one. Welcome to the group, the articles and wls success stories are very encouraging, as well as those who have come through complications. I have found it difficult to make friends on here that communicate with me regularly, but still get loads of encouraging posts and support, hope u enjoy and be encoraged, look forward to hearing from you. I am 55, disabled, happily married with 2 grown sons and 2 jack russell dogs that we treat like family, we are christians, but are not bible bashers or religeous, bye for now, Janet, x

Had a lovely christmas and the most peaceful happy new year eve. Have put about 7lb on but so ready to eat healthier food, meed to banish the nuts and choccy, we didnt buy much and there is not a lot left so that should be easy, ha haa, she says. Hope everyone is well and feeling positive about this new year. I am at peace knowing that God is with me and am believing that this lupus will be treated quickly and correctly so that i can have my sleeve. It is my bariatric support group ntomorrow night and i am looking forward to being there as i have got to know a few more people on fb and at a coffee morning. I am in a fibromyalgia support group on face book and am finding it such a blessing to be able to talk with people who understand what living with fibro is like living with it every day. Am seeing my diabetic specialist this afternoon and will be asking him how the lupus effects diabetese if at all, and discuss how i feel really yuk when i dont eat much and my blood sugar goes low, and will this be the case after my op and how they help with it etc. I am the first person with lupus to have the op at the new centre at dri, so it is a good learning curve for them and i have told them i will be willing to speak at the meetings when i have lost my weight to help others who may also have lupus and be disabled. Hoping to see the heamatologist this month, will report back when i have a date, bye for now, xx

HAPPY CHRISTMAS EVERYONE, MAY THE LOVE OF GOD BE IN YOUR HOME This Christmas AS WE CELEBRATE THE BIRTHDAY OF OUR SAVIOUR JESUS AGAIN THIS YEAR, LOVE, JOY, PEACE AND MUCH HAPPINESS TO ALL. Looking forward to my christmas dinner at my eldests sons house tomorrow, going to enjoy my dinner and try not to eat too much I have been told that i have to see a heamatologist about the lupus before i can have my operation. I have been assured that i am at the top of the list and as soon as the specialist as seen me and given me treatment he will talk to my surgeon and decide if and when i can have my op, should see the sdpecialist in jan, so i may be a feb sleever, i live in hope. xxx

Hi, just been told I do have lupus, my nurse is talking to my surgeon later today and will get back to me, I am pencilled in for Jan. I have Googler lupus and the sleeve and have found out that the sleeve is suggested and the people who have had the sleeve and have lupus are better after surgery, because the other illnesses have reduced, eg diabetes, sleep apnea got better, so I live in hope , x

am so really fed up of waiting for this blood test to tell me why my blood is not clotting, i was due to have my sleeve on the 9th oct but it was cancelled due to blood not clotting quick enough, i have made a ticker to show how long i have waited, ironic that it should be my days since the op, bur no, just days of more waiting, my blog is very honest today, am so fed up now, just hanging on by my fingernails, vent vent vent.

no, still waiting, i am in the uk and even though treatment is free, you just have to wait and wait, which is the only drawback, i am not worrying, my head is in a good place again. I am hoping the results come back this week and can get on with treatment if needed. I am just hoping that whatever it is i can still have my sleeve which will help me with most of the other illnesses i suffer with, thanks for replying, x

HI, IT WAS MY CLOTTING TIME THAT IS THE PROBLEM, x

Havn't felt like updating my blog, limbo land can be a lonely desolate place, it is only my Trust in God and my hubby that is keeping me going. I had a blood test for lupus 2 weeks on monday, don't know how long they will take. Hoping they will be back on monday so the surgeon can look at them on tues. Went to my local w l s support group last night, came away really down, even though the speaker was very good. As i sat waiting for hubby to come and push me, he dropped me off in my wheelchair and had to go park the car, i saw another bunch of new applicants coming out holding their white papers and worried looks on their faces, i can spot them a mile off, and can only wonder how many will get there, and how long it will take them. This year i had a chateract off my left eye on the 4th jan and it was good to start the new year with much better eyesight, am trying to be positive for the start of 2013, a new stomach and a new me, just got to try and not do too much damage over christmas, will only have to starve to get it off, so better not to overindulge. Happy Christmas sleevers and sleevers to be, enjoy the build up to Christmas and have a blessed day and a fantastic new you in the new year, lots of love, xx

forgot to say, i have had another blood test, for lupus, and am waiting for these to come back, 2 weeks on monday since i had those blood tests,

still waiting, i went to our local monthly wls support group last night and was told that they don't know what is going to happen because they havn't come across my problem before, it is a new dept, only 2 years old, so i have to just wait some more.Katie my nurse said she will pencil me in for the end of jan, but it may not be then because they don't know what treatment i will need and for how long. I came away feeling really down, i was 3 days away from my op and 3 months on still no definite date, the not knowing is the worst. Thank you for asking, i often feel so alone in this. Hope you are doing well, xx Janet, xx

now it is more waiting time for this blood test to come back, but feel better that something is been done. I am really hoping i don't have lupus, the google facts were not encouraging, but am not worrying. I could be just one of those people who have slower clotting times than other people, and if so, it shouldn't have any bad side effects, i have lived 15 years after my gall bladder out, so just not worrying, it was too thin then and here i am now, still alive, lol. My goal now is to not go mad over christmas, and still try to eat healthy like i need to for my health and to loose excess weight and maintain weight loss, after the op, and am more positive that i will get my sleeve done in the new year, a new start. 4th of Jan this year i had a chateract removed and that was a good start to the year, my eyesight is so much better, so a new stomach for jan 2013 will be great, heres hoping,

Am really at the end of my tether with it all now, feel like deleting the blog and go back to try and loose weight on my own, i am writing this blog to keep account of my life before and after the sleeve operation, but seriously wondering if i will ever have the op. I have been waiting in hope every day that i would get a telephone call to tell me why my blood isnt clotting and what the treatment will be. Why does it take this long, am sooo annoyed and fed up. I have been trusting in God and patiently waiting and if wasn't for my faith in God i just don't know what i would do. There is something inside that keeps me from walking away from it all and helps me to continue to hope and keep on with this, but i am still having to battle with my feelings which are at screaming point, my feelings say just give up and stay fat, but in me deep down i know that it is worth hanging on and keep waiting to get my operation, but it feels like i am hanging by my fingertips. I have had a really bad time with gout, and fibromyalgia this last month, in fact it is so bad i have had to get a chairlift to get upstairs to go to bed, i can hardly walk and am desperate to get this weight off which will help my joints not having to carry so much weight. It is 2 years in january since i first started the process and all the other people who started at the same time have had their ops and lost their weight. I know it can always seem to be darker just before the dawn but, i need my dawn now. I was told that i could ring my specialist nurse anytime which is good, but has she has never had this happen to a patient before she is in the dark too. I can't ring the hospital because they say they are checking everyday and will ring me as soon as the results are back. This limbo is driving me crazy, the not knowing is horrible. The comments are wearing thin now, that it is better to be safe than sorry, i know, i know, i have never wanted something as much as i want this and that is why it is so hard, i have jumped through hoops, starved for two weeks, and then nothing, dissapointment is the worse thing. Do i feel better for writing this, well, no not really, but as i am an honest person at least this hard part will be recorded and not glossed over. God doesn't say we won't have problems in this life, but thank you God you are with me and i know that only you will bring me through this time and that stretching and growth hurts, ouch, but it will all work together for my good, i just don't like this going through it, i need to be carried for a bit, my legs are tired of walking, i need rest, those that wait upon the Lord will renew their strength like eagles on the wind, I am waiting Lord. God is never late, always on time, His time. here endeth my blog for today. but hoping for in my next blog

ok, so finally took courage and rang my wls team and my blood tests came back on friday last week, but the surgeon has not looked at them yet and he can't tell me the results, but they dont look too bad, have to wait until tomorrow to get a call and dont know if i will get my op before christmas as problem with beds, give me strength........

Well. i really could scream now, just rang my dietician and he said that my blood tests are back, they came on friday, but the surgeon has not looked at them yet and he can't tell me what they say, other than it doesn't look too bad, but they have got probs with beds and don't know if any ops are going to happen before christmas, banging head with hand, and steam comimg out of my ears,

My mil had a saying, wherever you may be, let your wind go free, be it in church or chapel, just let it rattle, :-)

I was 55 last Monday and according to my then doc was told at age 40 I was skipping towards menopause, yet I have reg monthly heavy times. When I lost 10lbs on the pre op. Diet I had one come after only 10 days, then 4 weeks later on the 15th had a very light one, sooooo hoping my me no will pause soon,but suspect that after the op with weight loss it will continue. I think I am far tool old for this lol , x

6 weeks today since my blood test, struggled to keep eating healthy this week, my birthday was my undoing, i had some chocolate mints after my meal and it gave the taste back for chocolate. I really need to take control again, i have been down about the wait for my blood results this week and once i ate the foods i had cut out, the more i wanted them. I have felt really unwell after eating too much high fat high sugar foods, i am actually wanting to eat better and feel better again. Nothing tastes as good as loosing weight feels, i love the feeling that comes when i can feel the weight coming off, and i am eating right, and feel down when i am not loosing weight and eating right, perhaps i have learned more about my eating habits than i thought i had. My aim is to loose weight ready for my op and to continue to eat right and follow the rules so that i can loose weight and keep it off for life. The more i wait, the more i realise how important this is too me, and want it even more than ever. Really hoping this week will be the week that i get the results and know what treatment i will need, and most of all to get my new date for my sleeve. Really should go to bed and get some sleep, i will share my news as soon as i know anything, meanwhile, keep up the good work sleevers and sleevers to be, xx

Enjoyed a lovely carvey with hubby and our two sons yesterday for my birthday which is today. i even had half a yorkshire pudding, it was yummy. I am getting a stairlift fitted today, I didn't think i would be so excited by a stairlift on my 55th birthday, but can't wait, my left leg is agony when i walk, no more crawling upstairs in agony, yay. I am going out tonight with the ladies from our church, it is the ladies christmas meal that just so happens to be on my birthday, thinking i might have a steak. I am hoping that by this time next year i will be wearing size 18 rather than the 28 i am in today, or even a 16. I am already eating much smaller meals than i was able to eat last year, and next year i suspect i might be eating a starter for my main course, bring it on. Still waiting to get my blood test results back, hoping it will be soon, ive waited 5 weeks now, so must be nearer getting them. Funny thing about time, 5 weeks just seemed like an eternity 5 weeks ago, but here i am, 5 weeks done and hoping i will get the phone call any day now. I have been able to address comfort eating in this waiting time and also am pleased that i now prefer to go for the healthier options for my meals and always try to share it with my dogs or leave some on the plate, not bad for someone who was brought up to eat everything on my large plate. It took a long time to get over the dissapointment of my sleeve op being cancelled, but now i am at peace that i will have it when it is the right time for me, God knows best, i am resting in Him. I particularly wanted to do a blog today to record how i am feeling and will compare with how i am next year, believing God Has got good plans for me, to do me good and not harm, and that my latter years will be even more fruitful than my former years, that the years that the locusts have stolen from me will be restored back to me 100 fold, amen. Praying for everyone who reads this to have a quick easy operation with no complications and a swift good recovery, to get to the weight of your dreams. I also pray for all who have already been sleeved for good healthe and continous weight loss to get to your dream weight too, God Bless to all, Janet, xxxxx

praying for you, x

keep going, it does get easier when the hunger subsides and it will be worth it, you can do this. x

I had that prob when i first joined the forum, i got around it by quoting the post i was replying to. I am on my notebook now because i cannot add to my blog with the app and wanted to post an update. Sorry im not much help, hopefully someone else may be able to help you more than me, x

just spent 45 mins typing an update and poof, when i tried to preview it and edit a word it dissapeared basically, still waiting for blood test results, really fed up of waiting, not got my hopes up to have my op in november any more. Today i have cast my cares on the Lord and will have my op when He gives me the date, He knows best. I know i still want my sleeve, and will restart the liver shrinking diet when i have a new date for my sleeve. I am not concerned if it is just before christmas, any time soon will be ok with me, i was motivated and ready for oct 9th and can do it again, but this time without the problem of my blood it will be safer. Hope everyone is doing well, sleeved or to be sleeved, God Bless, xx