lauri

Neuro is sending me for an MRI of my lower back, and a spinal fluid pressure test(from what I understand it is kind of like an epidural but it will measure the pressure). He has, also, ordered this test that is like an MRI but it it more specific and looks at the vessels or something. I'm not sure when this is going to happen but they are going to call tomorrow with the date of the appointment. These tests won't explain the movement disorder but he is trying to get to the bottom of the migrains and the swelling in my lower back. He said that it will take a couple of weeks to get the blood tests results back that will tell if I have some kind of mutated gene or whatever. It's kind of scary but I am glad that he is doing everything in his power to help me-answers to prayers.

Hey All! I just wanted to pop in and see what is going on. I have an appointment with the neuro today. Blood work was taken to check DNA and all sorts of stuff. My last appointment wiht the neuro he increased my meds and I am doing better physically-not as much jerking and seizing. But, I am very tired and lethargic. I want so much to get on every thread and check on everyone and just visit and have a great time but sitting makes my symptoms worse. I am going to give phone number to anyone who wants it. Just PM me. I would love to talk. I hope I can meet some of you who live in this area. thank you for all of your prayers and kind thoughts. When I get really depressed, I think of all of you and feel better. love to you all

ryan, I am glad your wife is better. i will keep you both in my prayyers

Thanks everyone. I really miss visiting with all of you. I feel out of the loop! My dad is going to look into disability for me so that I can atleast keep my insurance and pay for my meds. I just want to know what is wrong and get back to normal. Thanks for all the love, prayers, and hugs.

Melissa, I'm sorry to hear that you are having port problems. Don't worry about grossing anyone here out. Have you seen Delarla's pictures-YIKES! Anyways, I can't be of any help but just wanted to let you know that I am thinking about you and will pray that it is nothing serious. (((Hugs)))

The meds are helping some. I have more control over my left hand but it takes a very concentrated effort to type with it. The jerking with my arm and leg are not as bad. I still don't have any answers. The chiro and orthopedist suggested MS. X-rays of my bones look good-going for an MRI to check the tendons in the AM. I will then be going to Houston to see my mothers DR who is really good and he is going to send me to a neurologist for some test where they stick needles in your legs etc and check your muscles, an eeg(whatever that is), and a spinal Fluid check. Sounds like fun doesn't it? The thing that is really irritating me is that I have gained about 4 pounds. With everyone waiting on me, I am not going to ask them to fix me something special. I just eat what they bring me. Mom did say that we were going to start eating better because she knows how hard I have tried to lose weight. It's just really hard to turn down comfort food right now. Since I cant work, I have lost my unemployment benefits and that really stinks. The kids and I are moving in with mom at Kingwood. HD is looking for a room to rent so that he can keep his job and pay the bills until we can figure out what to do. Please keep us in your prayers. By the way if anyone in the Denton area knows of an inexpensive place that Steven could check out please PM me. He works around TexasMotor Speedway. He has to be out of the house by the end of Jan. Thank you all for your love and prayers.

I am taking anti sesior(sp?) meds and anti-anxiety meds. Thank goodness we still have my grandmothers wheelchair. I havve at least been able to get around wwith some help. MRI's and blood tests haven't given any clue. When we get back from Denton we are going to go to a differesnt neurologist.

Thank you all so much for your love and prayers. I haven't felt like fighting with my parents dial up/ everytime I get on here, someones calls and kicks me off line!! they are in the computer dark ages. Physically, not much better or any news. Typings is hard cause I have limited fine motor skills with my left hand. I have a knee apoint tomorrow in Denton so we are packing up to go Little Elm. We will be coming back here in a few days. I will keep everyone posted. Thanks for being my friends-I miss you all.

I am at home with my mom in houston. The tests at the hospital all came back without any explaination of my symptoms. I have lost almost all use of my left hand, arm and leg. Mom is going to ttake me to a dr. here and see if we can get some answers.

Ok I may be spastic and sppent the last few days in th hospital but when they weighed me- drum roll please,,...,.211 What is that 8 pounds. Eating hospital food, being pumped with med. and all don't exactly make you want to eat. Now , if I can just survive my moms cooking and not being able to walk. I am going to try to get her to feed me healthy but her home cooking is so good.

Some of you may have noticed that I haven't been on much lately. Well, I haven't been feeling very well. My left knee has been giving out on me, chest hurting/wheezing, general weak feelings, dropping things, stumbling or falling, tingling in my left arm, etc. It's been really frustrating. I went to my PCP last week and was treated for an upper res. infection, and referred to a knee doc. (appointment is on the 28th) I just assumed, as she did, that the walking problem and weakness were a result of these things. Then, Monday I woke up and couldn't turn my head to the left. Thinking that a disc has slipped out again, I called my chiro.(I was in a bad accident right before school was out and so I thought maybe it had something to do with that) He did his thing but I was still having trouble. THEN, yesterday, I got up and my neck wouldn't turn, my arm was really tingling, and I could barely walk. I went in to the Chiro and he did some electric stimulation, massage and an adjustment but, also, said that he wanted me to see a neurologist and have an MRI done. He said my symptoms are indicative of MS. "What is that I thought?" I came home and tryed to rest. I am still wobbling everywhere and have started having these spasms on my LEFT side(I look like I am having convulsions!). It's been going on all night. I took a muscle relaxer, and motrin but it just keeps getting worse. I can't even walk without help. I'm trying not to get scared but I am really starting to freak out! Has anyone ever heard of symptoms like this?

Greg -you are doing a great job! Keep it up! Teresa- 2.2 is Awesome! It feels soooo good to see the scales drop after a little stand still. I'm really proud of you. Just think of the many people GAINING this time of year.