I have had the same issue for about 6-8 months now. I also have had the same tests several times over and they cannot find the source of the pain. I notice flare ups but this last and most recent one occurred last Friday. I was rushed to the ER with bad heart palpitations, shortness of breath, nausea, migriane headache, dizziness, extreme fatigue and achiness all over. I was vomiting in the ER and BP and body temp were all over the place. My port area hurts all the time, not to mention I can feel like its hardened around the port. I also feel lumps in my abdomen and they are painful. They couldn't find the source and tested my blood for sepsis which came back negative. I felt like I was dying and I just can't get any real answers.
I was diagnosed with autoimmune disease (RA, Hashimotos, Fibermyalgia) shortly after my band was put in Nov 2009. So they keep telling me that I'm having flare ups from that. I wasn't having flare ups before. I don't think the band caused my autoimmune but I do think it may be exacerbating it. I think I have an infection from the band and my body is probably rejecting it because of the autoimmune disease. We will find out for certain next Tuesday Sept 24th when they remove my band.
I have had my band filled and unfilled 3 times and each time I became malnourished and it made my anemia worse. At one point it was too tight and I was having night aspirations. I haven't had my ban filled for over a year now. As crappy as I still feel, I am over-joyed to have this thing taken out. I am just lucky my insurance is paying 100% of the removal. The surgeon wanted me to do a gastric sleeve. I respectfully declined. Once again I will have to do this weight loss journey the old fashion way, diet and exercise.
Please post any updates if you get any answers. I will do the same.