Mrs D

Hi everyone in the UK.Just to invite you all to the South west support group meeting this Saturday. 10th March at The Lamb & Flag Cribbs Causeway Near Bristol. starts around 7-730pm.Very informal evening, but lots of support. There are a wide range of wls 'ers. Bandsters, ds'ers, bypass. Family and friends. There is a travell lodge next door, lots of wonderfull shops!.It is for everyone not just folk from the south west. If you need more infoplease pm me. If you would like to come along and are a little on the shy side, pm me i will meet you.Mrs D

Hi, there is a group at the Nuffield Celtenham which meet on a Sunday afternoon the first sunday of each month.But there are a lot of people that come down the M5 to my group which is this Saturday. I may be bias but out group is brill.Fay

Hi I was just wondering what is the average cost in the us for a band these days. Here in the uk its very expensive. Mrs D

It seems quite expensive in the us. Just like the uk. Quite a lot of folk from the uk are going to Belgium where it is really affordable.Mrs D

Hi Just wondered if there was any support groups in your area? I have a list of groups all over the uk. May if there was one in your area I could add it.Regards,Mrs D

Hi, There is a group! hope the info can help.--------------------------------------------------------------------------------North West Meetings are held on a combination of Tuesdays and Thursday between 7pm 10pm, with the occaisional Saturday meeting.The meetings are a combination of informal chats and formal speakers.The venue is Greenbank Sports AcademyGreenbank LaneLiverpoolL17 1AGTel 0151 280 7757Greenbank is fully accessible and we have been meeting there for over a year and the staff and other users are very friendly.Click Here for Directions The group co-ordinator is Ken Clare ken.clare@wlsinfo.org.ukDETAILS OF FORTHCOMING MEETINGSSaturday 28th January 2006 2-5pm and then afterwards for food and drink.All Meetings 7-10 Greenbank Sports Academy.Thursday February 23 InformalTuesday March 28 Surprise Travellers TalesThursday April 27 TBCTuesday May 30 TBCThursday June 22 TBCTuesday July 18 TBCThursday September 14Saturday October 14 (Hosting AGM 2- Late)Tuesday October 24Thursday November 23Thursday December 14Good luck.Mrs D__________________

Hi, just throught I would say hello. I have a band, I've had it for 14months. I have lost weight.:myscared: But, I have MRSA. I've had it for the 14months with four weeks clear in that time. My first port was removed, as it came out through the wound. The mrsa would not let the wound heal. New port put in last may and 24hours later MRSA again. I paid for my band. It was not done on our NHS. Now I have to have the band removed, because the mrsa is not clearing up. Found this site, wondered if any body else has had their band removed? and how you coped. Mrs D

Hi, do your friends no about your band? Some of mine do some dont. So when we have friends over that dont I try and stick to Fish, salard. and a very fatterning pud!. For the friends that no I normally prouduce a paster dish. Small amouts of different types. And loads od ice cream. Always gose down well! Good luck anyway. Hope it gose well. Mrs D

Hi, Thanks for the info. Mrs D

hI, I have been on to the hospitol this morning. Things could be positive. I have to see my gp to ask for this medication. Only prob they tell me is the cost but I dont care i will pay if i have to. Thanks again. Mrs D.

MEETING DATES FOR CENTRAL LONDON SUPPORT GROUP 2007 First Meeting Sat 17th March, 2-4pm, and then the 3rd Saturday of every month following. venue. 30 DEVONSHIRE lONDON W1G6PU. The Marybone high st end. would this be any good for you?

Hi, Thank you for the info. I have just had a look on the uk webb and this drug is available in this country and it says its recomended for MRSA. Your knowledge is great thank you. Its 1136pm here so I am off to bed feeling a bit more positive knowing there may be hope. Can I say that when the vanco was given the first two weeks it went straight into my vein then after when they od me on it they used a machine to controll its pace of selivery.Anyway thnk you. I will keep u posted tomoorw on any news.Thanks againMrs D

They did the blood test. But the "Vanc" was very slow going through. My veins kept giveing up on me! so then i had to wait for a doc to come and put another canular in. So the dosege got complete mess up. When it went in it took =1 hour and a nalf to go through. Theh all of a sudden they prduced a machine to control how fast it would go in and god did it hurt! I will check out this other drug u recomend Thanks.

Yep I have treid quite a few alternative remdies. But alas they havent worked yet!mRS d

Yes you got it in one. Also I had another drug (which I cant spell) rephacin which caused a few fits. I had red mans syndrome and was quite ill with it.

Thanks, thw site seems great.

Goodluck with your wls. Just pm me if I can b of any help.

tHANK YOU FOR YOUR kind throughts.. They tell me that the mrsa is being casued by the band???????????? Cant quite work that out. And i have been on the iv antibiotics for 4 weeks and then became allergic to them!. So i think now i must say bye bye to my band and re think.Mrs D

Hi Sarah, There is a Bospa support group in Newton Abbott, and Taunton. They meet on a Sunday afternoon. They charge £20 life time membership and a pound each vist. There is also Hampshire support group meetings take place on saturdays between 11-30am & 3pm with occaisional tuesday evening meeting. The meetings are a combination of informal chats and formal speakers. The venue is, BUPA Hospital Portsmouth, Bartons Road, Havant, Hampshire. PO9 5NP. Tel no 023 9245 6000 this one. There is the one I run In Bristol well just out side off the m5. We meet the second Saturday of each month around 7pm at the Lamb and Flag Cribbs Causeway. And its free!. Any help/ fAY

hI, Yes, the band needs to be removed, I am told so the mrsa will clear up. I am allergic to the treatment of mrsa. I have to wait approx 6 months then can consider another band. But the problem is money. Here in the uk the cost of banding is high. So I need to save up all my pennies! Mrs D

Hi Mrsa is one of these superbugs. If you pick it up it is very hard to treat it and get rid of it. I picked it up after my band was put in. It is normally assosiated with dirty enviroments. Here in the UK Hospitols are battling with this super bug. It kills. I am very lucky to be alive my doc told me. I had the bug in my port wound, then the port came out through the wound, it broke through the weak skin. I had to have it removed in surgery. Then had another but in approx 4months later, and got mrsa again. Mrs D:(