Sannah

Hi! Evening!! A lot of details are in this post and you can read them too. I was 11 days post op when my leak was found. This entire ordeal was scary for me and my family. I still can't believe I made it through, but I did. I had several days of low back pain; a dull ache. One night if rigor and sweats. I saw the doctor and she said there was no way I had a leak I was too healthy. Haha. She said I would be going home in an hour when they confirmed her beliefs!!! Next thing a bed rolled up to wheel me down for emergency stent placement for my leak. My surgeon does not do leak test after because if there was a leak while she was in there she would see it with her eyes. I was and still am comfortable with this concept. A leak, is so much more than, a tiny hole!!! What is damaging is what happens to your other organs. In my case my heart and kidneys. Tsunami of emotions are involved in having a leak too. I have been going to counseling for a month and a half or two to learn to cope with everything. I am regretful of surgery. I have lost 71lbs, but it's SO insignificant compared to everything I have endured and I am still experiencing. Maybe in the future I will have different feelings. I thinks it's important for you and everyone else to know that neither I or my surgeon did anything wrong to cause this leak. I do not blame myself or her. People need to realize that complications just happen, it's a risk of surgery and you need to be aware of this. It's rare and unfortunately it happened to me. If there is anything I hope people can learn from my experience its to listen to your body. After all you know it best!! Always better safe than sorry. My symptoms were not typical of a leak, but I know my body and when things don't feel right. Try not to live in fear of a leak!! Best, Sannah

We are in the same page about going out of town. I am sure!! I say no way!!!! It's too much!!! How are things going for you? Gearing up for spring break with the kids? Did you end up telling them? Hubby doesn't trust his Mom can respect our desire for privacy. Our relationship with his Mom is hard. She is overbearing and often has issues with boundaries. So we generally don't share a lot with her. His relationship with her has always been this way, but now he protects our marriage by setting more boundaries. It would be nice to trust her, but she has proven otherwise. Bummer deal eh?

I believe I may have passed a smaller stone based on increased pain level and all the tissue that I peed out. Not sure i am reading to endure the impeding pain of passing another. Especially because my hubby is wanting to go out of town again to see his family. His family has no idea of anything I have endured. They know I am sick, losing weight and vomit often. Not good. I was told they will make up in there minds what is wrong with me. Likely that I have cancer. Not good. I want to be healthy before I see them again.

I know right? Who wants to lose an hour of sleep? Not me!!! See nephrologist Wednesday!!!

Hi Lisa, How are you doing? Yesterday was real hard for me. Today I am managing much better. But tired and the time change has messed up my daughters schedule a little bit. She did not want to nap today, as a result she is a Grumpy Gus!! Cant wait for her bedtime so I can have a little downtime. Best, Sannah.

Hi, Thank you kindly. This journey has been long and rough for me. I feel regretful. Yes, I completely agree with you about the surgeon who did my sleeve. I don't curse either, but I said the exact same thing about her!! I can not stand that lady!!! Soon as these stones pass. I will be in a better place. Hugs!! I hope your journey has been smooth!! Sannah

I passed a smaller stone and I think it was two days ago when I thought dying was a good option. They say I can pass them. Take the meds and follow up with the nephrologist. Blah. What a waste of time.

Haha. Your funny!!! Stones are still here moving around. Go home and wait it out. Follow up with nephrologist.

Isn't it funny?! Glad I look healthy!! But rest assured I don't feel healthy!!! These silly people. You're so right!! They can't read my face!! Other wise it would be a quick appointment. Haha. Well, we will see what he says.

They are seeing if the stones moved, passed or what they are doing . Every time I see the doctor they say I look healthy. He said i look to good to have stones!? I maybe I don't wear the pain on my face. I have been in misery. At one point I thought being dead would be better than to continue to endure the pain. It's bad pain. I do NOT want to die, but the pain it's something else. I was walking around with my leak. The doctor said there was no way I had a leak. I looked to healthy and I would be going home in an hour. Next thing I was rushed away for surgery.

Just came back from CT scan. I have urine and blood.

Thank you so much Lisa. It's hard. I want to feel human again. Keep drinking your water and OJ!!! I hope you keep getting better!!! I am sending healing love your way!!! Best, Sannah

Here's for you ladies!! Me at the ER looking serious and drugged up.

Hi Katie, Thank you for all this information. I feel comfort in your words. I feel cruddy, but you warm my heart. ???? Best, Sannah

I had a hard time. I can seem to keep food down. I talked to the nephrologist. I am here at the ER

Hi, No need to apologize. I know you would never mean to scare me. This entire journey has been scary for me. I think this is just another piece and unfortunately I have to do something about it so I can move on. I am so tired of not being well. I think I just have to grit my teeth one more time and hope for relief. Did it take you a while to heal from all this kidney stuff? Best, Sannah

I guess what I am saying is. If offered I would do it, because I don't want to live in pain or on medicine. I have been through enough and suffered too much. But do I go to the ER and ask for surgery to remove the stones? Seems kind of different.