This is so incredibly sad. My heart goes out to you. The medical community often discounts patients based on their biases - if you are woman, your age (too old or too young), if you are a person of color, if you look different, if you are overweight, whatever it may be that doesn't fit their perfect mindset.
At my heaviest, I started having difficulty walking without losing breath. My dad had congestive heart failure, so I freaked out and went to urgent care. The lady tried to tell me it was allergies. Allergies! My legs were swollen, which is one symptom, but that had also been happening for a very long time (previously disclosed to primary, who told me to 'put my feet up more') due in part to my blood pressure meds. Still, allergies was what I was told. No instinct to look further and consider that this was something serious, esp given family history. Fast forward to a month later, allergy meds aren't helping, and I go to my primary. I had to meet with the PA, and some random student assistant. The assistant told me I needed to exercise more. You know, when I can't breathe walking down the hallway - when I typically could do a 45 min hard workout with a trainer, even at nearly 400 lbs - I should totally be getting to the gym to deal with that not breathing thing. They then tried to tell me it was anxiety. My EKG was fine, other than a high heart rate, but they referred me to a cardiologist because of my family history.
Cardiologist was appalled by everyone and the fact no one took me seriously. He did, and we quickly realized I have dilated cardiomyopathy. He got me on a great med regimen and after a few tough months, I saw rapid improvement. He was the one who really pushed me to consider WLS, though he gave me time to get there emotionally and mentally. I lost weight on my own after all this happened, but couldn't keep it off, which is why I am where I am now. Thank goodness for that man. I'd be dead without him, because no one was listening when I knew something was very wrong.