I always see posts without an update, so I wanted to be sure to come back & five one!
we were all correct. The daily regurgitation was not normal. I went to a new surgeon in October. He was skeptical & wanted to blame it on too big of bites or overeating. I kept insisting I would have a feeling of being overly full eating less than one chicken finger, and I would still regurgitate it even an hour later. He decided to run some tests while giving me some food counseling. He was not a fan of the fact that I had little to no aftercare post surgery with my old surgeon.
I went back on purées. Basically every time you vomit, it causes swelling & takes about 3 days for the swelling to go down. We needed to get the swelling down for many reasons. Getting it under control helped me move back onto solid foods with small bites & portions.
We did the barium swallow test which showed liquids were going through fine, but I have a twist in my esophagus. Going in for my EGD scope, my surgeon was still claiming it was all bite size. He walked in after my scope & said, “yeah. So your anatomy is screwed up!”
Along with the twist in my esophagus (which basically means if I need to be tubed, it could be “more difficult”), I have a major kink in my stomach from scar tissue on the outside of it. Instead of being sleeve shaped, as it should be, it is like a capital N or S. In the middle there is a kink that he had a hard time even finding the opening of. Basically if it’s not liquid, it has to sit to digest to go down. This explains why I resorted to drinking my calories & eating easy carbs. He said it could have happened when I threw up right after surgery (a staple could have caught on something) or anytime in the initial healing.
So where does that leave me? I’m going in for a laparoscopic surgery to remove scar tissue January 13th. He can see the shape of my stomach from the scope, but he can’t know what the scar tissue is attached to or how bad it is til he gets in there. It could be attached to my liver. Yikes. So surgery could be half an hour, it could be 3. He may have to revise my sleeve to a bypass. I don’t want that because I have ulcerative colitis, so that’s very much so not recommended. However, I want to have the ability to eat without losing it.
I’ll be on a 2 week pre-surgery liquid diet, and then after surgery, it will be the post sleeve progression. I have about 30 lbs of regain. He expects I’ll lose that fairly easily by the time I’m on solid foods again. That’s good news.
Knowing I actually have something wrong with me, and I’m not crazy has been HUGE for me. I knew something was wrong, but I kept being told “bite size bite size bite size.” I have multiple friends with sleeves, and what I was experiencing was nothing like them. The eye opener was looking online & finding no one like me. So if you’re here because you’re searching, go for answers! :)