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freaker/tweaker

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vinesqueen

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I've had three of these episodes now, where I'm a freaker/tweaker for 2-4 hours, but it seems longer.

 

I just need to know that someone else experiences something similar to this, to know that I'm not alone.

 

I become frantic, frenetic, like every molicule in my body is vibrating at double what it should be. Can't think, can't make a coherent sentence, can only shake and pace and move and tweak. The first time I was a little euphoric, but the last two times I felt out of control in a bad way.

 

I don't doubt that If Iwas in public when this happens that I'll be arrested for public intoxication use of meth, or speed or crack. And not in a good way either.

 

This goes way beyond being "normally" Cushie energetic. There is no way I can get anything done, it's all I can do to not start screaming or yelling. I spent over an hour walking in a circle in my kitchen. I'd get dizzy, so I'd switch and walk the other way. I ended up leaving the house and walked around my block twice, at a speed-walker pace, crying all the while, tears streaming down my face. I'm sure the neighbors were alarmed at my erratic behaviour. *I* was alarmed.

 

When I"m in the teeth of one of these episodes I cannot hold a rational conversation. I can't even follow a simple one, not really. I repeat myself. I'll say the same thing two or three times, usually the end of the sentence I'm trying to say.

 

I also get TERRIBLY thursty, and end up drinking a couple quarts of water in one go.

 

Last week when this happened, I was in the middle of my 32 hour blood draw, and ended up with an ACTH of 59 and 60. Chris at least got to see how bad I was, at my very worst.

 

I called Chris, not sure how I managed to punch the buttons since my hands were shaking so bad. She told me to start yet another UFC, do a salivary, and get a blood draw at the end of the UFC. I dont' want to test anymore! I wanted it to STOP! I don't want to have another one of those episodes EVER. But all Chris could do was tell me to test. Of course, I wouldn't have ever thought to test while I was in the middle of that. Even though it's happened three times now, it would have never occured to me to test.

 

When I had regained my brain, after I stopped tweaking, I told my son that he was going to have to make me a drink. He was going to have to feed me rum until I stopped tweaking. I know that alcohol and Cortisol "eat" each other. I just feel like I cannot go through another one of those episodes. I just cannot face it. I know it is a danger signal to think in "black and white" concepts, but I'm just so terrified of those episodes.

 

But what also frightens me is the thought of the crash that is bound to follow, either this afternoon or tomorrow. Where I'll lose conciousness, where I'll have "extreme weakness" with the crushing pain of the headaches and the back pain will burn my very soul.

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I've had three of these episodes now, where I'm a freaker/tweaker for 2-4 hours, but it seems longer.

I just need to know that someone else experiences something similar to this, to know that I'm not alone.

I become frantic, frenetic, like every molicule in my body is vibrating at double what it should be. Can't think, can't make a coherent sentence, can only shake and pace and move and tweak. The first time I was a little euphoric, but the last two times I felt out of control in a bad way.

I don't doubt that If Iwas in public when this happens that I'll be arrested for public intoxication use of meth, or speed or crack. And not in a good way either.

This goes way beyond being "normally" Cushie energetic. There is no way I can get anything done, it's all I can do to not start screaming or yelling. I spent over an hour walking in a circle in my kitchen. I'd get dizzy, so I'd switch and walk the other way. I ended up leaving the house and walked around my block twice, at a speed-walker pace, crying all the while, tears streaming down my face. I'm sure the neighbors were alarmed at my erratic behaviour. *I* was alarmed.

When I"m in the teeth of one of these episodes I cannot hold a rational conversation. I can't even follow a simple one, not really. I repeat myself. I'll say the same thing two or three times, usually the end of the sentence I'm trying to say.

I also get TERRIBLY thursty, and end up drinking a couple quarts of water in one go.

Last week when this happened, I was in the middle of my 32 hour blood draw, and ended up with an ACTH of 59 and 60. Chris at least got to see how bad I was, at my very worst.

I called Chris, not sure how I managed to punch the buttons since my hands were shaking so bad. She told me to start yet another UFC, do a salivary, and get a blood draw at the end of the UFC. I dont' want to test anymore! I wanted it to STOP! I don't want to have another one of those episodes EVER. But all Chris could do was tell me to test. Of course, I wouldn't have ever thought to test while I was in the middle of that. Even though it's happened three times now, it would have never occured to me to test.

When I had regained my brain, after I stopped tweaking, I told my son that he was going to have to make me a drink. He was going to have to feed me rum until I stopped tweaking. I know that alcohol and Cortisol "eat" each other. I just feel like I cannot go through another one of those episodes. I just cannot face it. I know it is a danger signal to think in "black and white" concepts, but I'm just so terrified of those episodes.

But what also frightens me is the thought of the crash that is bound to follow, either this afternoon or tomorrow. Where I'll lose conciousness, where I'll have "extreme weakness" with the crushing pain of the headaches and the back pain will burn my very soul.

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Oh honey I am so sorry. I wish and pray that I could help. You are such a strong lady for journaling. It helps others to know they are not alone. I wish I could hug you.

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I am so sorry that you are having to go through this. I think they would have already locked me up, because I don't know how I would handle it. I looked at the Cushings site that you mentioned for more info on this disease. Please hang in there. I can only imagine what you're going through, and I hope it doesn't offend, but I will pray for strength for you.

Take care. Sam

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Guest jahair

Posted

Hey Turtle Queen! I'd always wondered why you had that name as your avatar and now I know. I just finished your journal from start to latest post and I just want to tell that I LOVE YOU!!!

I'm a sucker for acts of true courage and your life and the decision to journal is one continual act of courage. I admire you and I will hold you in the light. Please let us know what's going on currently.

Jo Ann

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