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only 4-5 weeks to my op

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blood test for lupus - still waiting

Havn't felt like updating my blog, limbo land can be a lonely desolate place, it is only my Trust in God and my hubby that is keeping me going. I had a blood test for lupus 2 weeks on monday, don't know how long they will take. Hoping they will be back on monday so the surgeon can look at them on tues. Went to my local w l s support group last night, came away really down, even though the speaker was very good. As i sat waiting for hubby to come and push me, he dropped me off in my wheelchair and had to go park the car, i saw another bunch of new applicants coming out holding their white papers and worried looks on their faces, i can spot them a mile off, and can only wonder how many will get there, and how long it will take them. This year i had a chateract off my left eye on the 4th jan and it was good to start the new year with much better eyesight, am trying to be positive for the start of 2013, a new stomach and a new me, just got to try and not do too much damage over christmas, will only have to starve to get it off, so better not to overindulge. Happy Christmas sleevers and sleevers to be, enjoy the build up to Christmas and have a blessed day and a fantastic new you in the new year, lots of love, xx
pink grace

pink grace

0
 

April will be my month

Had my appointment with the haematologist today, i finally have the results i need to have my operation, i have the factor in my blood but not the syndrome which is the thing that does the damage, so i can have my operation i just need to have blood thinning drugs after for a bit longer just as a precaution, just waiting to hear from my surgeon with a new date in april, so close now and actually believe i will have my op in april, who hoo, so ready for this, x
pink grace

pink grace

0
 

6 Weeks

6 weeks today since my blood test, struggled to keep eating healthy this week, my birthday was my undoing, i had some chocolate mints after my meal and it gave the taste back for chocolate. I really need to take control again, i have been down about the wait for my blood results this week and once i ate the foods i had cut out, the more i wanted them. I have felt really unwell after eating too much high fat high sugar foods, i am actually wanting to eat better and feel better again. Nothing tastes as good as loosing weight feels, i love the feeling that comes when i can feel the weight coming off, and i am eating right, and feel down when i am not loosing weight and eating right, perhaps i have learned more about my eating habits than i thought i had. My aim is to loose weight ready for my op and to continue to eat right and follow the rules so that i can loose weight and keep it off for life. The more i wait, the more i realise how important this is too me, and want it even more than ever. Really hoping this week will be the week that i get the results and know what treatment i will need, and most of all to get my new date for my sleeve. Really should go to bed and get some sleep, i will share my news as soon as i know anything, meanwhile, keep up the good work sleevers and sleevers to be, xx
pink grace

pink grace

0
 

another week and still waiting

Hello fellower sleevers and sleevers to be, i am waiting to see the heamatologist but have still not got a date I saw my diabetic specialist last week and it was very encouraging, i am 3kg down since July, my last appointment, my blood sugar readings are good, and even though it is not his field he said that as far as he could tell i am borderline lupus and this shouldn't cause any probs with my op. I was able to ask him questions about when i stop injecting victoza and he reassured me that i won't go hypo after the op because i will have stopped the victoza. I am going to reduce the dosage when i get a date and do the pre op diet again so that i won't have hypo probs on 800 cals a day. I came home much relieved. I got weighed yesterday and was shocked at the scales, good job i was starting to cut cals and eat healthier that day. Hope all are well and loosing or maintaining weight, bye for now, x
pink grace

pink grace

0
 

What A Fortnight

My 88 year old mom in law passed away last night, such a difficult time, my mom is still very confused and we still don't know what is causing this. I had my pre op assessment today and was asked if i wanted to rescedule the op but we had talked about it and me and hubby decided we will still go ahead, his mom would want me to, so my op is still on tues 9th, Everything went well, just waiting for mrsa to be clear and the bloods to confirm my blood group. Went to my support group tonight and the dietician explained about dumping and why it happens, also why not to drink when eating, everyone was so positive it really did me good and i met a lady who is having a bypass on the monday and will be in the same ward as me, so i will know at least one person. I had lost 12 lbs today and loads of my waist, was very pleased. Am really worn out so off to bed now, and only 4 days to go, yay.
pink grace

pink grace

1
 

One Day I Will Be Sleeved

just spent 45 mins typing an update and poof, when i tried to preview it and edit a word it dissapeared basically, still waiting for blood test results, really fed up of waiting, not got my hopes up to have my op in november any more. Today i have cast my cares on the Lord and will have my op when He gives me the date, He knows best. I know i still want my sleeve, and will restart the liver shrinking diet when i have a new date for my sleeve. I am not concerned if it is just before christmas, any time soon will be ok with me, i was motivated and ready for oct 9th and can do it again, but this time without the problem of my blood it will be safer. Hope everyone is doing well, sleeved or to be sleeved, God Bless, xx
pink grace

pink grace

0
 

so, now have whooping cough

groan, have just been told i could be having my sleeve at the end of march, then i found out that this horrible cough i have had for more than 3 weeks is whooping cough. I just give up with the date, concentrating on getting better, and then will think about the date, God is in control, in His time, xx
pink grace

pink grace

0
 

1st February

Where has the month gone, i'm glad it has gone because it brings me nearer to finding out when my sleeve will be. It is 2 years now since i begun the process and i am so ready to get this done and to move into my new sleeved life. The latest update is i am still waiting, for yet more blood tests to come back to finaly know what is wrong with my blood. I have another appointment of the 18 th feb to see the heamatologist again, when hopefully the blood tests will be back and i should be given a certificate stating what is wrong with my blood in case i want to have more procedures in the future. I was glad that even though i have lupus it is not full blown, i presume i will have to keep having blood tests to monitor the lupus. I have my mom in hospital yet again, and she has decided she wants to go into a nursing home as it is too much for her to live at home anymore, only time will tel if she actually does go into a nursing home, we got Robins mom a place in a brilliant home last year then the day before she was due to move in she changed her mind. I am hoping i can have my sleeve in march and no later, but until i am actually being wheeled into the operating room for the op it wont seem real. I am trusting in the Lord and not leaning on my own understanding and know He will direct my way. Counting down the days again, xx
pink grace

pink grace

0
 

Happy New Year

Had a lovely christmas and the most peaceful happy new year eve. Have put about 7lb on but so ready to eat healthier food, meed to banish the nuts and choccy, we didnt buy much and there is not a lot left so that should be easy, ha haa, she says. Hope everyone is well and feeling positive about this new year. I am at peace knowing that God is with me and am believing that this lupus will be treated quickly and correctly so that i can have my sleeve. It is my bariatric support group ntomorrow night and i am looking forward to being there as i have got to know a few more people on fb and at a coffee morning. I am in a fibromyalgia support group on face book and am finding it such a blessing to be able to talk with people who understand what living with fibro is like living with it every day. Am seeing my diabetic specialist this afternoon and will be asking him how the lupus effects diabetese if at all, and discuss how i feel really yuk when i dont eat much and my blood sugar goes low, and will this be the case after my op and how they help with it etc. I am the first person with lupus to have the op at the new centre at dri, so it is a good learning curve for them and i have told them i will be willing to speak at the meetings when i have lost my weight to help others who may also have lupus and be disabled. Hoping to see the heamatologist this month, will report back when i have a date, bye for now, xx
pink grace

pink grace

0
 

Had My Blood Test

Had a long talk with my bariatric nurse today, and she has found out that a person 2 weeks ago had the same problem and the treatment was a vitamin K injection and then they had their operation. I have to wait 2 weeks for the results and should have my operation in november, in about a month, meanwhile i am staying on the liver reducing diet so that i am ready for a cancellation at a day's notice, but i am doing 1,000 rather than the 800 and less that i was on. Ive also ordered some milk thistle to help my liver, which was fatty 15 years ago, and presume could still be fatty. I have been researching the fatty liver online and that could be the cause of my blood problem, but no one medical ever suggested anything 15 years ago, bit annoyed about that, but will just have to wait and see what the results are when they come back. My blood clotting time was 49 secs and it should be in the upper 20's,
pink grace

pink grace

0
 

5 Days Nearer

Instead of counting how many days i have to wait, i am counting each day as a day nearer to getting my blood results and a new date. My sis has had her op and they think they have got the cancer early enough for it not to have spread, she gets the reults next friday; My mom may be home early next week, and my husbands mom's funeral is next friday. Hubby's brother has been offered a council bungalow to rent so that is another tick on the things to be done list. I have been reading loads of posts on here to encourage others and to learn even more about the sleeve. I am still on my liver shrinking diet and did less than 1,000 cals yesterday, but today i could eat a lot more, it might help if i knew how long i had to do this for, but at least it will be getting me ready to much less cals after the sleeve. I wa surprised to read today that you can eat 1,300 cals a day after the sleeve to maintain the weight loss, at the moment i have to eat less than 1,000 to loose weight, but perhaps i may have a better metabalism after the op, got to keep the hope up and be positive, I am still battling with the dissapointment with the delay of my op, but getting there, day by day. I must not eat chocolate, i must not eat chocolate, wonder how many times i need to write this to stop the desire, lol, hey ho, on we go, lettuce really is as nice as chocolate, not, lol.
pink grace

pink grace

0
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